Repository of Research and Investigative Information

Repository of Research and Investigative Information

Kurdistan University of Medical Sciences

Being parent of a child with congenital heart disease, what does it mean? A qualitative research

(2021) Being parent of a child with congenital heart disease, what does it mean? A qualitative research. BMC Psychology.

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Abstract

Background: Childbirth is one of the invaluable human experiences and is associated with parental happiness. However, when a child is born with congenital heart disease, it creates emotional and mental distress. As a result, it changes the parents� response to their child birth. Exploring parenthood experiences add to the body of knowledge and reveal new perspectives. In order to make healthcare professionals able to support these children and their families, they should first understand the meaning of this phenomenon. This study aimed to explore the meaning of parenting a child with Congenital Heart Disease in Iran. Methods: A qualitative study was adopted with a conventional content analysis approach and constant comparative analysis. Participants in this study were 17 parents, including parents of children with congenital heart disease who were selected by purposeful sampling method. Semi-structured interviews were used for data collection and continued to data saturation. Data were analyzed via MAXQDA 10 software. Results: Four categories and twenty three subcategories emerged as meaning of parenting a child with Congenital Heart Disease. Categories include �Emotional breakdown�, �The catastrophic burden of care�, �Spiritual beliefs of parents� and �The hard road� Conclusions: Fully understanding the life experience of these families will allow the implementation of targeted health interventions. Hence, by understanding the meaning of parenting a child with Congenital Heart Disease, healthcare professionals can asses parents emotional statues, information and spiritual needs, financial condition, insurance and marital status using CHD standards so that support is individualized, sensitive and time appropriate. © 2021, The Author(s).

Item Type: Article
Keywords: child; child parent relation; congenital heart malformation; human; Iran; qualitative research, Child; Heart Defects, Congenital; Humans; Iran; Parenting; Parents; Qualitative Research
Subjects: WY Nursing > WY 191-200 Other Services
Journal or Publication Title: BMC Psychology
Journal Index: ISI
Volume: 9
Number: 1
Publisher: BioMed Central Ltd
Identification Number: 10.1186/s40359-021-00539-0
ISSN: 20507283
Depositing User: مسعود رسول آبادی
URI: http://eprints.muk.ac.ir/id/eprint/5224

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